Autor según el artículo: Fernando Vidal

Departamento: Antropologia, Filosofia i Treball Social

Autor/es de la URV: Vidal, Fernando

Palabras clave: Syndrome looking Quality-of-life Quality of life (qol) Phenomenology Personhood Locked-in syndrome (lis) Lived experience Invasive ventilation Illness narratives Consciousness Cognitive impairment Case series Brain-computer interfaces Amyotrophic-lateral-sclerosis Amyotrophic lateral sclerosis (als) Alternative communication

Resumen: There is no systematic knowledge about how individuals with Locked-in Syndrome (LIS) experience their situation. A phenomenology of LIS, in the sense of a description of subjective experience as lived by the ill persons themselves, does not yet exist as an organized endeavor. The present article takes a step in that direction by reviewing various materials and making some suggestions. First-person narratives provide the most important sources, but very few have been discussed. LIS barely appears in bioethics and neuroethics. Research on Quality of Life (QOL) provides relevant information, one questionnaire study explores the sense of personal continuity in LIS patients, and LIS has been used as a test case of theories in 'embodied cognition' and to explore issues in the phenomenology of illness and communication. A systematic phenomenology of LIS would draw on these different areas: while some deal directly with subjective experience, others throw light on its psychological, sociocultural and materials conditions. Such an undertaking can contribute to the improvement of care and QOL, and help inform philosophical questions, such as those concerning the properties that define persons, the conditions of their identity and continuity, or the dynamics of embodiment and intersubjectivity.

Áreas temáticas: Sociologia i política Social sciences, biomedical Psychiatry and mental health Psicología Philosophy Neurology Medical ethics Health policy Filosofia/teologia:subcomissão filosofia Filosofía Ethics Ciencias sociales

Acceso a la licencia de uso: https://creativecommons.org/licenses/by/3.0/es/

ISSN: 18745490

Direcció de correo del autor: fernando.vidal@urv.cat

Identificador del autor: 0000-0002-2956-8607

Fecha de alta del registro: 2023-02-18

Versión del articulo depositado: info:eu-repo/semantics/acceptedVersion

Enlace a la fuente original: https://link.springer.com/article/10.1007/s12152-018-9388-1

URL Documento de licencia: http://repositori.urv.cat/ca/proteccio-de-dades/

Referencia al articulo segun fuente origial: Neuroethics. 2018 (2): 1-25

Referencia de l'ítem segons les normes APA: Fernando Vidal (2020). Phenomenology of the Locked-in Syndrome: An Overview and Some Suggestions. Neuroethics, 2018(2), 1-25. DOI: 10.1007/s12152-018-9388-1

DOI del artículo: 10.1007/s12152-018-9388-1

Entidad: Universitat Rovira i Virgili

Año de publicación de la revista: 2020

Tipo de publicación: Journal Publications