Author, as appears in the article.: Alegre-Agis, Elisa; Garcia-Santesmases, Andrea; Pie-Balaguer, Asun; Martinez-Hernaez, Angel; Bekele, Deborah; Morales-Saez, Nicolas; Serrano-Miguel, Mercedes
Department: Antropologia, Filosofia i Treball Social
URV's Author/s: Alegre Agís, Elisa / Bekele, Deborah / Martinez Hernaez, Angel / Morales Sáez, Nicolás
Keywords: Spain Severe mental disorders Qualitative research Mothers Mental disorders Medical anthropology Institutional violence Humans Gender-based violence Female Caregivers Autonomous medication Adult stigma schizophrenia medical anthropology management institutional violence illness gender-based violence families cost children caregivers burden
Abstract: In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers' experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of "nested dependencies", which create social isolation. This produces the conditions of "reactionary care", practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it.© 2022. The Author(s).
Thematic Areas: Social sciences, interdisciplinary Social sciences, biomedical Saúde coletiva Psychiatry and mental health Psychiatry Medicine (miscellaneous) Medicina ii Medicina i Health (social science) Enfermagem Ciencias sociales Ciencias humanas Arts and humanities (miscellaneous) Antropología Anthropology
licence for use: https://creativecommons.org/licenses/by/3.0/es/
Author's mail: elisa.alegre@urv.cat deborah.bekele@estudiants.urv.cat nicolas.morales@estudiants.urv.cat elisa.alegre@urv.cat angel.martinez@urv.cat
Author identifier: 0000-0003-3720-7163 0000-0003-3720-7163 0000-0002-5122-7075
Record's date: 2024-08-03
Papper version: info:eu-repo/semantics/publishedVersion
Link to the original source: https://link.springer.com/article/10.1007/s11013-022-09788-z
Licence document URL: https://repositori.urv.cat/ca/proteccio-de-dades/
Papper original source: Culture Medicine And Psychiatry. 47 (3): 790-813
APA: Alegre-Agis, Elisa; Garcia-Santesmases, Andrea; Pie-Balaguer, Asun; Martinez-Hernaez, Angel; Bekele, Deborah; Morales-Saez, Nicolas; Serrano-Miguel, M (2023). Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia. Culture Medicine And Psychiatry, 47(3), 790-813. DOI: 10.1007/s11013-022-09788-z
Article's DOI: 10.1007/s11013-022-09788-z
Entity: Universitat Rovira i Virgili
Journal publication year: 2023
Publication Type: Journal Publications
Repositori URV