Author, as appears in the article.: Alegre-Agís E; García-Santesmases A; Pié-Balaguer A; Martínez-Hernáez À; Bekele D ; Morales-Sáez N; Serrano-Miguel M

Department: Antropologia, Filosofia i Treball Social

URV's Author/s: Alegre Agís, Elisa / Bekele, Deborah / Martinez Hernaez, Angel / Morales Sáez, Nicolás

Keywords: Severe mental disorders Medical anthropology Institutional violence Gender-based violence Caregivers Autonomous medication stigma schizophrenia medical anthropology management institutional violence illness gender-based violence families cost children caregivers burden

Abstract: In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers' experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of "nested dependencies", which create social isolation. This produces the conditions of "reactionary care", practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it.© 2022. The Author(s).

Thematic Areas: Social sciences, interdisciplinary Social sciences, biomedical Saúde coletiva Psychiatry and mental health Psychiatry Medicine (miscellaneous) Medicina ii Medicina i Health (social science) Enfermagem Ciencias sociales Ciencias humanas Arts and humanities (miscellaneous) Antropología Anthropology

licence for use: https://creativecommons.org/licenses/by/3.0/es/

Author's mail: elisa.alegre@urv.cat angel.martinez@urv.cat elisa.alegre@urv.cat nicolas.morales@estudiants.urv.cat deborah.bekele@estudiants.urv.cat

Author identifier: 0000-0003-3720-7163 0000-0002-5122-7075 0000-0003-3720-7163

Record's date: 2023-08-29

Papper version: info:eu-repo/semantics/publishedVersion

Link to the original source: https://link.springer.com/article/10.1007/s11013-022-09788-z

Licence document URL: http://repositori.urv.cat/ca/proteccio-de-dades/

Papper original source: Culture Medicine And Psychiatry. 47 (3): 790-813

APA: Alegre-Agís E; García-Santesmases A; Pié-Balaguer A; Martínez-Hernáez À; Bekele D ; Morales-Sáez N; Serrano-Miguel M (2023). Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia. Culture Medicine And Psychiatry, 47(3), 790-813. DOI: 10.1007/s11013-022-09788-z

Article's DOI: 10.1007/s11013-022-09788-z

Entity: Universitat Rovira i Virgili

Journal publication year: 2023

Publication Type: Journal Publications