Author, as appears in the article.: Grosjean, Sylvie; Farre, Jordi Coma; Gal, Ota; Laffan, Aoife; Sendra, Anna; Stuempel, Johanne; Mestre, Tiago
Department: Estudis de Comunicació
URV's Author/s: Farré Coma, Jorge / SENDRA TOSET, ANNA
Keywords: Trajectory Quality of life Patients’ experience Participatory design Parkinson’s disease Parkinson disease Narrative interviews Narration Integrated care Humans Europe Delivery of health care, integrated Co-design Canada trajectory services perspective patients' experience parkinson's disease narrative interviews management interviews health-care europe co-design canada
Abstract: An integrated care model for people living with Parkinson’s disease (PD) offers the promise of meeting complex care needs in a person-centered way that addresses fragmentation and improves quality of life. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners. In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. A qualitative analysis of these narrative interviews based on the Corbin and Strauss model was done to map out patients’ trajectories. Three typical trajectories were identified: (a) the “unpredictable” trajectory, (b) the “situated” trajectory, and (c) the “demanding” trajectory. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network.
Thematic Areas: Sociologia i política Social sciences, interdisciplinary Social sciences, biomedical Saúde coletiva Public health, environmental and occupational health Psicología Nursing Medicina ii Interdisciplinar Information science & library science Health policy & services General o multidisciplinar Farmacia Ensino Enfermagem Educação física Economia Ciencias sociales
licence for use: https://creativecommons.org/licenses/by/3.0/es/
Author's mail: jordi.farre@urv.cat
Author identifier: 0000-0002-4465-911X
Record's date: 2024-10-12
Papper version: info:eu-repo/semantics/publishedVersion
Link to the original source: https://journals.sagepub.com/doi/10.1177/10497323211042605
Licence document URL: https://repositori.urv.cat/ca/proteccio-de-dades/
Papper original source: Qualitative Health Research. 31 (14): 2585-2601
APA: Grosjean, Sylvie; Farre, Jordi Coma; Gal, Ota; Laffan, Aoife; Sendra, Anna; Stuempel, Johanne; Mestre, Tiago (2021). Co-designing an Integrated Care Network With People Living With Parkinson’s Disease: From Patients’ Narratives to Trajectory Analysis. Qualitative Health Research, 31(14), 2585-2601. DOI: 10.1177/10497323211042605
Article's DOI: 10.1177/10497323211042605
Entity: Universitat Rovira i Virgili
Journal publication year: 2021
Publication Type: Journal Publications
Repositori URV