Autor según el artículo: Grosjean, Sylvie; Farre, Jordi Coma; Gal, Ota; Laffan, Aoife; Sendra, Anna; Stuempel, Johanne; Mestre, Tiago
Departamento: Estudis de Comunicació
Autor/es de la URV: Farré Coma, Jorge / SENDRA TOSET, ANNA
Palabras clave: Trajectory Quality of life Patients’ experience Participatory design Parkinson’s disease Parkinson disease Narrative interviews Narration Integrated care Humans Europe Delivery of health care, integrated Co-design Canada trajectory services perspective patients' experience parkinson's disease narrative interviews management interviews health-care europe co-design canada
Resumen: An integrated care model for people living with Parkinson’s disease (PD) offers the promise of meeting complex care needs in a person-centered way that addresses fragmentation and improves quality of life. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners. In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. A qualitative analysis of these narrative interviews based on the Corbin and Strauss model was done to map out patients’ trajectories. Three typical trajectories were identified: (a) the “unpredictable” trajectory, (b) the “situated” trajectory, and (c) the “demanding” trajectory. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network.
Áreas temáticas: Sociologia i política Social sciences, interdisciplinary Social sciences, biomedical Saúde coletiva Public health, environmental and occupational health Psicología Nursing Medicina ii Interdisciplinar Information science & library science Health policy & services General o multidisciplinar Farmacia Ensino Enfermagem Educação física Economia Ciencias sociales
Acceso a la licencia de uso: https://creativecommons.org/licenses/by/3.0/es/
Direcció de correo del autor: jordi.farre@urv.cat
Identificador del autor: 0000-0002-4465-911X
Fecha de alta del registro: 2024-10-12
Versión del articulo depositado: info:eu-repo/semantics/publishedVersion
Enlace a la fuente original: https://journals.sagepub.com/doi/10.1177/10497323211042605
URL Documento de licencia: https://repositori.urv.cat/ca/proteccio-de-dades/
Referencia al articulo segun fuente origial: Qualitative Health Research. 31 (14): 2585-2601
Referencia de l'ítem segons les normes APA: Grosjean, Sylvie; Farre, Jordi Coma; Gal, Ota; Laffan, Aoife; Sendra, Anna; Stuempel, Johanne; Mestre, Tiago (2021). Co-designing an Integrated Care Network With People Living With Parkinson’s Disease: From Patients’ Narratives to Trajectory Analysis. Qualitative Health Research, 31(14), 2585-2601. DOI: 10.1177/10497323211042605
DOI del artículo: 10.1177/10497323211042605
Entidad: Universitat Rovira i Virgili
Año de publicación de la revista: 2021
Tipo de publicación: Journal Publications
Repositori URV